For years, the Burns Registry of Australia and New Zealand (BRANZ) has been keen to gather patient-reported outcome measures (PROMs). A previous trial where hospitals took the lead saw few participants and many people dropping out, suggesting a new approach might be better.

One major concern was that hospital staff were already busy, so adding another task might not work well. Plus, half the patients were discharged before their follow-ups were planned.

So, BRANZ thought about centralizing the task. This means one group would handle collecting PROMs for all burn patients, not just in hospitals. This way, the hospitals' workloads wouldn't increase.

But getting patients involved is tricky. Some may not want to participate, or might move and be hard to find. To make it appealing, BRANZ could offer incentives, like gift cards, to boost interest.

It's also crucial to keep the process simple. Complex forms or frequent checks might discourage patients. So, BRANZ needs to figure out a user-friendly and efficient way to gather these important stories.

In the end, PROMs can help healthcare providers understand patients' experiences better. This can guide improvements in burn care and treatment. But it's a balancing act between respecting patients' time and getting the info needed.

How Burn Patients' Stories Shape Their Care

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